EVENTS

* Our Feb. 27th Annual Event has been postponed *

To our incredible Bailey’s Butterflies community, 

We wanted to personally reach out and let you know that the health and safety of our families, volunteers and supporters are the top priority of our organization. As so many of us are directly impacted in various ways by the Covid-19 pandemic, we have come to the difficult decision that an in person event will not be held this spring, however, we may try to hold a smaller event in the fall. 

While we are extremely disappointed and will miss seeing your faces at The Villages Polo Club on February 27th, we know that this is the most responsible decision for the health and safety of our greater community.

 

In lieu of attending, we hope that you will support us in one or all of the following ways in the month of February:

  • Make a donation 

  • Post your own fundraiser on social media with Bailey’s Butterflies as the recipient

  • Purchase                         from Bailey’s Butterflies

  • Share Turner Syndrome facts on social media or with your family, friends and coworkers. See                     page.

  • On Feb 27th, wear your BB4TS apparel or something purple, posting a picture with #BB4TS

 

Bailey’s Butterflies for Turner Syndrome continues to be dedicated to providing resources and support for individuals and families affected by TS through community awareness and education. Since 2018, we have sponsored six families to attend the Annual National TS Conference. These families where able to network with other TS families and physicians, learning about the advancements, treatments, support groups, and clinics specializing in care. Our donations to the Turner Syndrome Society and Turner Syndrome Global Alliance have helped ensure global support and research are available. One of our biggest achievements is the continued partnership with Turner Syndrome Global Alliance on a national project called                                      supported by REDCap and Colorado Children’s Hospital for the development and use of standardized templates to capture patient information; which in turn will assist in the advancement of TS research and care.  

 

Thank you so much for your support and dedication to Bailey’s Butterflies for Turner Syndrome during this time. Your efforts will make a difference for girls, women and families affected by Turner Syndrome. 

~ Your Bailey's Butterflies Team